Schedule

Registration Link for NEALS Members here During this workshop, participants will engage in live demonstrations covering various aspects of ventilation and respiratory care for ALS patients. These include an extended learning experience on the use of portable spirometers, data dashboards for remote monitoring of pulmonary function tests and home ventilation systems. Pulmonary experts will showcase airway clearance techniques and equipment, bi-level positive airway pressure support and non-invasive ventilation. The goal of the workshop is to engage the community of ALS providers for hands-on learning on improvements and innovations in the field of respiratory care. This activity provides an opportunity to discuss the current state of diverse practices and goals of achieving ALS respiratory standards of care. Please note that advanced registration is required for this workshop. Due to the hands-on nature of the training, registration will be capped at 60 participants. We encourage you to register early to secure your spot.

• NEALS Member Workshop/Training Sessions (NEALS Members Only)

• NEALS Committee Meetings (NEALS Members Only)

• NEALS Committee Meetings (NEALS Members Only)

• NEALS Committee Meetings (NEALS Members Only)

• NEALS Committee Meetings (NEALS Members Only)

Registration Link for NEALS Members here The Clinical Research Staff Training & Development Workshop is led by experienced members from the NEALS Consortium Coordinating Centers and will emphasize site management techniques, including study feasibility considerations, study start-up and activation, participant recruitment and retention strategies, the informed consent process, ensuring Good Clinical Practice (GCP), Institutional Review Board (IRB) submissions, utilizing an electronic Regulatory Document System (eISF), addressing staffing models needs, and preparation for monitoring visits. Participants who successfully complete this workshop will receive a certificate of completion. This certification reflects a participant's dedication to upholding high standards in clinical research management and may be advantageous for those pursuing continuing education activities.

• NEALS Member Workshop/Training Sessions (NEALS Members Only)

• NEALS Committee Meetings (NEALS Members Only)

• NEALS Committee Meetings (NEALS Members Only)

• NEALS Committee Meetings (NEALS Members Only)

• NEALS Committee Meetings (NEALS Members Only)

• NEALS Committee Meetings (NEALS Members Only)

The Outcome Measures training is for new and experienced NEALS Clinical Trial Evaluators. The session will focus on training for the core outcomes measures: ALSFRS-R (ALS Functional Rating Scale, Revised), vital capacity, and muscle strength using handheld dynamometry. Attendance at this session will fulfill training requirements for new and re-certifying evaluators. Updates to outcome measure protocols, as well as hands-on practice and technique checks will be part of this training.

• NEALS Member Workshop/Training Sessions (NEALS Members Only)

• NEALS Committee Meetings (NEALS Members Only)

• NEALS Committee Meetings (NEALS Members Only)

• NEALS Committee Meetings (NEALS Members Only)

• NEALS Committee Meetings (NEALS Members Only)

• NEALS Committee Meetings (NEALS Members Only)