Skeletal dysplasia, let's talk about it !

Target Audience

This event is primarily intended for parents, families and caregivers of children with skeletal dysplasia who wish to learn more about the subject. However, professionals are also welcome to attend if they wish to know more about the resources and issues faced by the families they work with. Organized in a virtual format, it will be possible to participate in the event remotely across Quebec, Canada and even beyond. Simultaneous translation will be available for all presentations (French and English).

Thanks to the collaboration of the teams of four Montreal pediatric centers, namely, the CHU Sainte-Justine, its Marie Enfant Rehabilitation Centre, the Montreal Children's Hospital and the Shriners Hospitals for Children - Canada, this event will once again bring together families, professionals, organizations and partners to discuss a unifying theme.

Format

The conferences will be held in virtual format. Required equipment: computer or tablet with an Internet connection.

Program

The program will include a mix of conferences and testimonials on various topics related to genetics, medical follow-up, rehabilitation, surgeries, and socio-community resources and issues.

The event will unfold in 3 blocks reflecting the chronology of major life events of a child with skeletal dysplasia:

• BLOCK 1 - Starting at birth
• BLOCK 2 - From childhood to adolescence
• BLOCK 3 - Heading towards adulthood

Simultaneous translation will be available for all presentations (French and English).

The preliminary program of the event is available under the "Program" tab or by clicking HERE.

Registration

Registration is free, but mandatory. Register online by clicking on the ''Registration'' tab or HERE

About MUSCO

The MUSCO Initiative is a collaborative effort between four pediatric institutions aiming to improve the quality of life of children with musculoskeletal disorders and requiring complex care. This event for families is organised as part of the many projects that fall under the MUSCO umbrella. For more information about the MUSCO Initiative: https://musco.ca/en/