Schedule

Qu’est-ce qui explique l'évolution du recours à l’aide médicale à mourir au Québec? Avancées des travaux du CIRAMM | Marie-Ève Bouthillier, Isabelle Marcoux, Catherine Perron Vécu relationnel et cadre procédural : perspectives de patients, proches et professionnels sur l’euthanasie aux Pays-Bas | Dominique Girard Co-développement d'une trajectoire de soins relationnelle en contexte de refus d’aide médicale à mourir | Alexandra Beaudin Enjeux éthiques entourant l’aide médicale à mourir et les demandes anticipées chez les personnes aînées : revue rapide de la littérature | Mohamed Amine Bouchlaghem Les effets du théâtre documentaire sur le raisonnement moral des spectateurs | Simon Lemyre Trouvez les résumés complets de la journée ici : Livret des résumés / Abstract Booklet

This seminar examines the evolving landscape of caregiver support in palliative care, highlighting the essential role of family caregivers as partners in palliative and end‑of‑life care. Through a person‑centred, social work/psychosocial informed lens, the session equips social workers and psychosocial providers with evidence‑informed, culturally safe interventions that enhance their capacity to support caregivers with clarity, compassion, and professional confidence. By the end of this seminar, participants will be able to: Assess caregiver needs at end of life using person‑centred, culturally safe approaches consistent with WHO palliative care principles of holistic support for patients and families. Apply evidence‑informed psychosocial interventions that reduce caregiver distress, strengthen coping, and promote continuity of care within interdisciplinary palliative care teams. Integrate core social work values; dignity, partnership, relational practice, and equity into caregiver support to enhance compassionate, ethical, and family‑centred end‑of‑life care. Co-chairs:Zelda FreitasPatrick Durivage Susan BlackerVivian Myron

Seminar Overview Across Canada and internationally, advances in neonatal care, chronic disease management, and life-sustaining technologies have transformed survival for many children who once would not have lived beyond infancy or early childhood. This seminar focuses on the ethical and societal responsibilities that follow survival, particularly as children with medical complexity and technology dependence move from pediatric systems into adult care, home, hospice, school, and community settings. The day creates a shared space to ask how care must evolve across the lifespan. It emphasizes disrupting and bridging pediatric and adult systems, advance care planning, family partnership, psychosocial support, policy and systems advocacy, and practical models that match longer survival with meaningful support, equity, and quality of life. Who Should Attend Pediatric and adult clinicians across disciplines, family partners and caregivers, researchers, educators, and health system leaders with an interest in medical complexity, technology dependence, transitions of care, and palliative care across the lifespan. Learning Objectives By the end of this seminar, participants will be able to: 1. Examine the ethical and societal responsibilities that follow longer survival with medical complexity. 2. Identify models that bridge pediatric, adult, home, hospice, and community care across transitions. 3. Define priorities for family partnership, advance care planning, policy, and future palliative care leadership at the intersection of pediatric and adult systems. Themes and Questions for the Day Responsibility after survival • What responsibilities do health systems and societies assume when life-sustaining technologies enable long-term survival with significant complexity?• How should ethical frameworks evolve when survival extends across childhood, adolescence, and adulthood? Transitions across systems • How can pediatric and adult systems build continuity for young people who are too old for pediatrics but too complex for typical adult care?• What would seamless pediatric-adult palliative care and advance care planning look like across decades of illness? Care beyond hospital walls • What models of home, hospice, school, community, and social support are needed outside hospital environments?• Where are families still falling through the gaps, and what supports are most urgent? The future role of pediatric palliative care • What should pediatric palliative care lead, share, and advocate for in future systems of care?• If we gather again in ten years, what must be different for children with medical complexity and their families? Program 8:30 - 8:45 : Introduction to the Day Welcome, objectives, and framing of the day by the seminar co-chairs Naomi Goloff and Kate Wong 8:45 - 10:00 Block 1 — When Survival Changes the Story Main address (60 min): When Survival Changes the Story — Parental Perspectives on Systemic Realities Stephanie Padavan and Nathalie Richard Oral abstract (15 min): Navigating Complexity — Parents' Experiences within the Healthcare of their Child with Medical Complexity and Neurological Impairment Andrea Johnson 10:00 - 10:30 : Break 10:30 - 11:45 Block 2 — Changing Survival, Changing Needs Main address (60 min): Clinical, Ethical, and System Implications — Bridging Adult Care and Advance Care Planning Christine Watt and Monika Führer Oral abstract (15 min): Comparing Pediatric and Adult Inpatient Palliative Care — Insights from a National Quality Improvement Benchmarking Registry Andrea C. Postier 11:45 - 1:15 : Lunch 1:15 - 2:15 Block 3 — Beyond the Hospital Main address (45 min): Transitions and Psychosocial System Design Megan Miller Oral abstract (15 min): Social Support in Pediatric Palliative Care — Qualitative Analysis of Network Maps of Parents Kerstin Hein 2:15 - 2:45 Block 4 — Policy and Community Systems Panel Panel on policy, systems, and community responsibilities after survival, featuring family and caregiver perspectives Étoile de Pacho panelistsModerator: Nathalie Richard 2:45 - 3:15 : Break 3:15 - 4:30 Block 5 — Integrative Panel and Closing Panel discussion: Designing the Future — Disrupting and Bridging Pediatric and Adult SystemsEnd-of-day reflections: Synthesizing the Roadmap between Adult and Pediatric Care Stephanie Padavan, Nathalie Richard, Christine Watt, Monika Führer, Megan Miller

Chair: Romayne Gallagher Co-chairs: Henrique Parsons & Kelly Fen Learning Objectives By the end of this masterclass, participants will be able to: 1. Analyze key sources of existential distress and existential strength in patients with serious illness, differentiating their clinical manifestations and underlying contributors. 2. Differentiate existential distress from primary psychiatric conditions (e.g., depression, anxiety, delirium) and evaluate when additional psychiatric assessment or intervention is warranted. 3. Understand structured clinical approaches (e.g., cognitive behavioural, dignity-conserving, meaning-centered therapy) to assess and address existential distress in patients and families. 4. Integrate strategies to foster resilience in patients, families, and clinicians, and design individualized approaches tailored to clinical context and patient values. 5. Reflect on personal and professional responses to existential suffering and formulate approaches to sustain clinician resilience and presence in the face of distress.

Objectifs globaux de la journée Approfondir la compréhension du deuil Explorer des représentations contemporaines du deuil. Reconnaître la diversité des expériences et trajectoires du deuil selon l’identité et le contexte de vie des patients et leurs familles. Mettre en lumière des pratiques vivantes Présenter des interventions innovantes (ex., arts, récits, rituels, pratiques communautaires). Découvrir des outils d’accompagnement individualisés et collectifs. Stimuler la réflexion multidisciplinaire et le partage de savoirs expérientiels sollicitant nos différents sens. Cultiver une posture réflexive Interroger ses représentations du deuil et ses propres réactions face à la perte. Soutenir une pratique réflexive continue chez les personnes œuvrant en soins palliatifs Favoriser l’intégration de la réflexion personnelle à la pratique professionnelle pour offrir un accompagnant empreint de sensibilité aux vécus diversifiés tout en préservant sa vitalité de soignant Au terme de la journée, le participant repartira avec une sensibilité accrue à la diversité des vécus du deuil et il pourra s’inspirer des approches innovantes proposées par les divers conférenciers. De plus, il pourra renforcer sa posture thérapeutique en prenant davantage conscience de ses propres réactions face à la perte et en nourrissant une pratique professionnelle attentive, collaborative et respectueuse des besoins des personnes en deuil et de leurs proches. Partie 1: 8:30-10:00: Deuil contemporain et rituels Jean-Marc Barreau Partie 2: 10:30-12:00: Deuil en contexte d'aide médicale à mourir Dominic Girard et Véronique Després Partie 3: 13:00-14:30: Deuil à travers les cultures Lilyane Rachedi et Julian Menezes Partie 4: 15:00-16:30: Deuil collectif et art Nina Segalowitz

Objectives: By the end of this presentation, participants will be able to: Analyze how communities of practice and networks of support are developed in palliative care, including approaches that strengthen peer connections and integrate formal and informal supports through building social connection, amplifying family voices, and embedding community capacity‑building. Examine applied examples of community‑based partnerships that foster grief and death literacy and extend support for caregiving, dying, and grieving into everyday community settings such as schools, workplaces, arts, and civic organizations. Evaluate the implications of reorienting palliative care and bereavement support toward community wellbeing and shared responsibility.

Utilisabilité, acceptabilité et effets anxiolytiques d’une expérience de réalité virtuelle en soins palliatifs : résultats de deux études pilotes canadiennes | Alexander Moreno Qualité des Soins Palliatifs et de Fin de Vie : Élaboration d’Indicateurs de Qualité Basés sur les Expériences de Patients et de Proches | Olivia Nguyen et Sabrina Lessard Évaluation des effets d’un traitement manuel ostéopathique sur la gestion de la douleur en contexte de cancer et de soins palliatifs | Laurent Stubbe Trouvez les résumés complets de la journée ici : Livret des résumés / Abstract Booklet

Burnout parental et trajectoires de soins pédiatriques : récits d’enfants et de fratries | Josée Chénard et Ariane Sisavath Scan environnemental des ressources communautaires dans le contexte des soins palliatifs et de fin de vie au Québec | Emilie Allard et Gabrielle Fortin Une Fenêtre Sur L’Expérience Des Soins Palliatifs De Fin De Vie Des Personnes Âgées Qui Ont Connu L’Itinérance | Émilie Cormier Comment les jeunes proches aidants font-ils leur deuil? Exploration qualitative du processus relationnel de la proche aidance à la post aidance | Alexandra Guité-Verret La participation à la recherche peut-elle aider les parents dans leur cheminement d’adaptation à long terme après le décès de leur enfant? | Carolanne Asselin Trouvez les résumés complets de la journée ici : Livret des résumés / Abstract Booklet