Schedule

Presented by Dr. Sonya Jakubec, extending from the pre-conference workshop on the same theme, this 90 minute walkshop [walking workshop] focuses on evidence-informed frameworks and tools to support pathways to nature connectedness in palliative and grief care. Here we ask: How are parks and nature connections best supported in palliative and grief care? Specific pathways to nature connectedness as well as activities for engagement, celebration, design and embodiment of the connection for palliative and grief care will be facilitated with activities en route to Arbutus Cove and along the beach from the grounds of the University of Victoria - and back in time for the conference proceedings. Be prepared for an immersive, exploratory and connected experience to start your day. NOTE: While new discussion points and activities will occur in this walkshop, participants do not need to have attended the pre-conference workshop to attend. This is an immersive, gentle nature walking and learning experience that will proceed rain or shine - participants are advised to come prepared for all weather with sunscreen, hats, umbrellas and rain jackets!

Join us for a Buffet Breakfast of fluffy scrambled eggs (GF); bacon (GF) and sausage; hash browns (GF/Vegan); selection of fruit juices, Salt Spring Organic Fair Trade Coffee and assorted teas.

Presented by Dr. Barb Pesut. With the extension of medical assistance in dying (MAID) to persons whose natural death is not reasonably foreseeable, the public health approach to palliative care becomes both urgent and paramount. Persons seeking a MAID death under Track 2 have illnesses and/or disabilities that puts them at risk for social stigma, poverty, and gaslighting by healthcare professionals. Such experiences can make it difficult for them to seek supportive care and eleventh hour attempts to relieve their suffering after a decision for MAID is notoriously difficult. In this presentation I will describe innovative approaches to extending palliative care to these persons who are not on a dying trajectory.

Ethical challenges in accessing support resources in perinatal palliative care: A normative analysis through the lens of relational ethics. Presented by Sophie Roy, Université Laval Evaluating the unknown: Navigating the evaluation of hospice-based public health palliative care activities, Presented by Carol McAllum, Palliative Medicine Specialist, Mercy Hospice, Auckland, New Zealand Trialling end of life doulas as part of the UK National Health Service: What worked…and what didn’t! Presented by Harriet Radermacher, End of Life Doula UK Equity in Pediatric Palliative Care: Laying the Foundation for Inclusive Practices. Presented by Charlie Dazé and Rae Martens, Canada's Pediatric Palliative Care Alliance, Roger Neilson Children's Hospice

Exploring the experiences of healthcare professionals caring for the dying in intensive care: A phenomenological approach. Presented by Julie Wilding, PhD Candidate Lancaster University A community-based participatory research partnership to strengthen caregiver support in the community. Karin Fink, McGill University Identifying Palliative Care Needs in Individuals Experiencing Homelessness by Third Sector and Social Professionals. Preliminary Results of a Qualitative Study. Presented by Monika Fernández-Alonso, IIS Biobizkaia Health Research Institute: Engaging young adults in conversations about death and dying through arts-based approaches. Presented by Kris Smith, Institute on Aging and Lifelone Health, University of Victoria Assessment of Clinical Encounters - Communication Tool (ACE-CT): Mixed methods development and validation for use in measuring serious illness communication competence. Presented by Anish Arora, Department of Oncology, McMaster University

“I wish I knew”: Assessing older adults’ perceived and actual knowledge of their partners’ end-of-life preferences. Presented by Clément Meier, Faculty of Business and Economics (HEC), University of Lausanne, and Swiss Centre of Expertise in the Social Sciences Building a causal model for the relationship between Death Literacy, its theorized determinants, mediating factors, and outcomes: a qualitative mixed-methods study. Presented by Astrid Verhue, Compassionate Communities Centre of Expertise (COCO), Vrije Universiteit Brussel (VUB), Brussels, Belgium I welcome the conversation: What talking to people about Assisted Dying helps us understand about community priorities. Presented by Mary Hodgson, St Christopher's Hospice Advancing the Care Experience for patients receiving Palliative care as they Transition from hospital to Home (ACEPATH): Using an innovative Co-design approach to create an intervention to improve patient and family caregiver experiences. Presented by Taylor Shorting and Madeline McCoy Bruyère Health Research Institute

Presented by Dr. Holly Prince. Embracing a health equity-oriented approach to palliative care is essential for improving the health outcomes for Indigenous Peoples. This approach challenges colonial systems that have caused disparities and ensures care is aligned with Indigenous Peoples' cultural and social values. By integrating Indigenous Knowledges and practices into healthcare and prioritizing diversity and equity, we can provide equitable and culturally safe-r care for Indigenous peoples as they transition to the spirit world.

On behalf of the organizing committee, Drs. Luc Deliens and Hsien Seow will recognize the top submissions from each theme.

Join us for a deluxe lunch buffet of sandwiches, salads, sweets, and beverages.

Experiences of stigma and opioid prescribing for people with opioid use disorder requiring palliative care: A multi-setting qualitative study. Presented by Lisa Boucher, Bruyère Health Research Institute, Ottawa, Canada The Impact of COVID-19 on Racial Disparities in Death Quality: The Moderating Role of Hospice and Palliative Care. Presented by Cliff Ross, Vanderbilt University, Equitable Approaches to Palliative Pain Management in a Structural Vulnerability Context: A Secondary Analysis of Community Based Participatory Action Studies. Presented by Samara Mayer, Institute on Aging and Lifelong Health, University of Victoria Do patients who die of opioid toxicity receive palliative care? A descriptive cohort study. Presented by Jenny Lau, Division of Palliative Care, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada, 2Division of Palliative Care, Department of Family and Community Medicine, University of Toronto

Challenging norms at the end-of-life through LGBTQ+ perspectives. Presented by Max Kleijberg, Karolinska Institutet Supporting the Journey Home: Community-Based Palliative Care Education with Health Care Providers in First Nations Communities. Presented by Bethany Bocchinfuso, McMaster University Using co-creation to adapt a practice support tool to be more culturally sensitive. Presented by Kathleen Yue, BC Centre for Palliative Care, School of Nursing, University of British Columbia How do we know what we don’t know: Journey mapping to describe palliative and end-of-life care needs for urban Inuit. Presented by Benjamin Carroll, Champlain Hospice Palliative Care Program

1. Background/context Most employees will experience bereavement, serious illness, or caregiving responsibilities during their careers. These experiences can significantly impact well-being, productivity, and safety in the workplace. For many, the workplace is also a significant source of social support. Organizational structures, policies, and culture play a crucial role in determining the degree of support or isolation employees feel during End-of-Life (EoL) experiences. This workshop is based on the initial phases of a 5-year European research project ongoing in Austria, Belgium, Greece and Sweden, where Compassionate Workplace Programs (CWPs) are being co-created with employees, researchers, and facilitators, and tailored to each of the 12 participating workplaces. 2. Objectives/purpose During this workshop, participants will: Learn about and share challenges and opportunities involved in initiating mixed methods participatory research on Compassionate Workplaces Discuss existing workplace assets and needs identified by participating workplaces Identify real-world challenges in the first stages of implementing compassion initiatives, for example, gaining entry, engagement and promoting active participation, and discuss potential solutions 3. Workshop approach A brief presentation from the ongoing project sets the scene for in-depth, interactive discussions. The presentation will give an overview of identified challenges from the project and of existing workplace assets and needs. Through small group discussions, participants will exchange experiences, review potential resources, and consider strategies to address identified challenges in different contexts. The small group discussions will be the basis for a final, joint discussion and conclusion. Hosted by Deborah De Moortel 1, Hanne Bakelants 1, Steven Vanderstichelen2 , Joachim Cohen2 , Carol Tishelman 3 1 Compassionate Communities Centre of Expertise (COCO), Vrije Universiteit Brussel, Belgium, 2 End-of-Life Care Research Group, Vrije Universiteit Brussel & Ghent University, Belgium, 3 Dept of Learning, informatics, management and ethics, Karolinska Institutet

Today’s world is full of loss. Whether it is loss of life, identity, purpose and meaning, material resources, or connection to culture and land. Public Health Palliative Care is in the business of responding to grief - a normal response to loss - yet our usual ways of doing things in Western systems can fall short. This is particularly true as we work to support the grief and loss needs in settings of homelessness and housing instability, toxic drug crises, and racism and discrimination that lead to shortened life expectancies, poorer quality of life and death, and disenfranchised grief for those left behind. Yet, in these contexts, communities are always already caring for one another and there is a need for palliative care to engage, walk alongside, and support communities in this important work. In this panel presentation, you will hear of innovative approaches to grief and loss in settings of homelessness and housing instability that enable the strengths of people living and working in the street community to mobilize care and support for one another. Hosted by Char Futcher, Bernice Kamano, Trevor Morey, Hayley Sallis; Moderator: Ashley Mollison

Background: Art-making and arts-based research methods are becoming more widely used to support research which aims to centre the voices of people and communities often underserved or marginalised in health services. Creativity is a universal human act. There has never been a time or place in human history where creativity has not been part of expression and communication. Art-making, when safely facilitated, can be a leveller in the traditional power dynamics between healthcare professionals, researchers, participants and patients. It can allow people to participate for whom verbal expression may not be first preference or possible at all. Through the creation of images and objects, it is possible to communicate deeper and wider thoughts, experiences and emotions than just through speech. Objectives/purpose: In this experiential workshop, participants will have the opportunity to take part in creative exercises and experience first hand the power or art-making to expand conversations and process thoughts and experiences. Workshop approach: Participants will have chance to process material from the conference, reflect on their own mortality and think about how creativity might support clinical, community and research practices. Conferences can be overwhelming and full and the workshop will also offer space to slow down and process the experience. Relevance: Experiential learning is embedded in our own practice on a deeper level than traditional teaching methods. Participants will have chance to experience the power of creative practice and think about how it might enhance their own practices as clinicians, community enablers and researchers. Originality: Contemporary research practice must evolve to ensure greater equity and relevance to communities. This workshop offers a creative, experiential perspective to conference participants. Relevance to conference theme: The conference themes focus on equity, innovation and new approaches to researching and delivering palliative care. Creativity has a role to play and this workshop offers participants a chance to consider how they might use creativity to innovate, collaborate and engage with people and communities on a deeper, more authentic way. Hosted by Jed Jerwood, University of Birmingham, UK

Patient and Caregiver-reported Acceptability of an “Automatic” Supportive and Palliative Care Referral for Advanced Lung Cancer Patients with translation into Clinical Practice. Presented by Lisa Shirt, Palliative Clinical Nurse Specialist, Alberta Health Services Developing an evaluation framework for government-initiated palliative care reforms: A Theory of Change approach. Presented by Louise D’Eer, End-of-Life Care Research Group, Vrije Universiteit Brussel & Ghent University Co-Creating Change: A Public Campaign Strategy to Overcome Misconceptions and Stigma in Palliative Care. Presented by Marjolein Matthys, End-of-Life Care Research Group, Vrije Universiteit Brussel & Ghent University Bot attack! Bots, Artificial Intelligence, and Bereavement Research. Presented by Susan Cadell, Renison University College, University of Waterloo

Presented by Dr. Sue Tan. This seminar is a 90 minute crash course on Human-Centred Design, which is an approach to problem-solving that places real people at the center of the design process. This method ensures that solutions are tailored to the needs, preferences, and pain points of the users, especially for diverse populations in complex systems. This seminar will teach you how to apply these creative and empathy-driven problem solving methods to research, so it is more impactful and relevant to the people it is meant to serve. Participants will learn about the fundamental principles and benefits of the approach, as well as get to jump into a few group-based exercises that bring them to life and connect them to real-world applications within the unique context of healthcare. Key concepts will include user empathy, defining (the right) problems, and collaborative ideation and design.

Presented by Drs. Emily Jenkins & Allie Slemon. Multi-site research holds the potential to contribute rich, site-specific insights while enhancing research impact; however, guidance for conducting analyses of multi-site data is lacking. This workshop will introduce participants to conducting multi-site qualitative analysis (MSQA). We will introduce a model to guide the MSQA process, focusing on strategies for developing within- and between-site themes while attending to the research site context, presenting findings, and maximizing the impact of research on healthcare practices and outcomes. Participants will discuss how using a multi-site analytical approach can facilitate the development of broader research implications to inform healthcare practices and policies.

Conference Co-Chairs Drs. Hsien Seow and Kelli Stajduhar will provide closing remarks.

Optional sharing of tapas