08:30

Canada/Eastern

08:30 - 10:30 EDT

Morning Session (In-Person)

8:30 am: Sudden cardiac death in children - A pathologist’s perspective: Dr. Kristopher Cunningham Learning objectives: 1. Describe the role of the pathologist in evaluating sudden cardiac death in children 2. Explain the approach to families including sharing of information and initiation of screening 9:10 am: SIDS - Assessment and follow up of affected families: Dr. Susan Etheridge Learning objectives: 1. Identify some of the unique issues seen in neonates with inherited arrhythmia conditions. 2. Recall the up-to-date knowledge about the contribution of inherited arrhythmia conditions to SIDS. 3. Outline the genetic testing and phenotype assessment in an infant with SIDS that would make one concerned about an inherited arrhythmia condition. 4. Describe which families of SIDS patients will require investigation for an inherited arrhythmia condition. 9:50 am: Unexplained cardiac arrest - messages of hope for the family: Dr. Christian Steinberg Learning objectives: 1. Recall the diagnostic and genetic approach towards individuals with unexplained cardiac arrest (UCA) 2. Describe the importance of systematic evaluation of first-degree family members 3. Describe the importance of periodic reassessment of index cases with UCA

10:50

Canada/Eastern

10:50 - 12:30 EDT

HiRO Public Forum (In-Person)

10: 50 am: Opening Remarks: The Role of HiRO 11:00 am: Supporting patients and families in the inherited arrhythmia clinic, the valuable role of a nurse coordinator: Jillian Bay 11:10 am: A Patient Experience - Dr. Lynn Ashdown 11:20 am: The Role of the SADS Foundation: Ms. Pam Husband 11:30 am: Panel Discussion Opening Remarks: Mr. Adam Hoerdt Q&A Closing Remarks Learning Objectives: 1. Explore the family experience and psychosocial challenges of living with an inherited heart condition 2. Identify the existing community resources available for supporting patients and families at risk of sudden cardiac death 3. Discuss strategies for improving access to support resources for Canadian families

12:30

Canada/Eastern

12:30 - 13:00 EDT

Lunch

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