Agenda

Welcome to the 2025 CARELeuko Symposium! Join our team at the registration table to sign in, pick up your name badge, and enjoy a light breakfast. Poster presenters may also set up their posters during this time.

Dr. Geneviève Bernard, MD, MSc, FRCPc (McGill University Health Centre)

Dr. Sunita Venkateswaran, MD, FRCPc (London Health Sciences Centre)

Keynote Address

Dr. Isabelle Thiffault, PhD, FACMGG (Children’s Mercy Kansas City)

Session I : Early and Accurate Diagnosis

Justin Simo (Montreal Neurological Institute)

Session I : Early and Accurate Diagnosis

Dr. Neal Sondheimer, MD, PhD (Children’s Hospital of Eastern Ontario)

Session I : Early and Accurate Diagnosis

Poster presenters may set up their posters if they haven’t already.

Dr. Donald C. Vinh, MD, FRCPc, FACP (McGill University Health Centre)

Session 2 : Translational Research in Leukodystrophies

Dr. Thomas Durcan, PhD (Montreal Neurological Institute)

Session 2 : Translational Research in Leukodystrophies

Dr. Jo Anne Stratton, PhD (Montreal Neurological Institute)

Session 2 : Translational Research in Leukodystrophies

Samuel Gauthier (McGill University Health Centre Research Institute)

Session 2 : Translational Research in Leukodystrophies

Dr. Stephanie Newman, PhD (London Health Sciences Centre)

Session 2 : Translational Research in Leukodystrophies

Poster viewing begins at 1:10 PM.

Dr. Laurence Gauqelin, MD (CHU de Québec - Université Laval)

Session 3 : Clinical Research and Family Impact

Riham Badawy (ALD Hope)

Session 3 : Clinical Research and Family Impact

Moderators: Sabrina Alam, PhD and Ruwan Bedeir

Session 3 : Clinical Research and Family Impact

Poster presenters may also take down their posters at this time or at the end of the Symposium.

Dr. Thierry Lacaze-Masmonteil, MD, PhD (RareKids-CAN)

Session 4 : Cross-National-Border Collaboration

Dr. Francois Bernier, MD (University of Calgary)

Session 4 : Cross-National-Border Collaboration

Dr. Adeline Vanderver, MD (Children’s Hospital of Philadelphia)

Session 4 : Cross-National-Border Collaboration

Representative from Cree Board of Health and Social Services of James Bay

Session 4 : Cross-National-Border Collaboration

Dr. Roberta La Piana, MD, PhD (Montreal Neurological Institute)

Please join us after the symposium for dinner in the PK Subban Atrium at the Montreal Children’s Hospital. This is the perfect opportunity to connect with the Leukodystrophy community, and continue conversations sparked throughout the day. We hope to see you there!