Schedule
* All times are based on Canada/Eastern EDT.
7:30 AM
Canada/Eastern
8:00 AM
Canada/Eastern
Welcome address
8:30 AM
Canada/Eastern
Plexiform Neurofibromas – Diagnosis and treatment
Lucie Lafay-Cousin (Calgary), Sébastien Perreault (CHU Sainte-Justine)
9:15 AM
Canada/Eastern
Gliomas – Diagnosis and treatment
Craig Erker (IWK), Magimairajan Issai Vanan (Winnipeg), Nirav Thacker (CHEO)
10:00 AM
Canada/Eastern
Break
10:15 AM
Canada/Eastern
Cutaneous neurofibromas- Management
Sarah Lapointe (CHUM), Suganth Suppiah (University of Toronto)
10:45 AM
Canada/Eastern
Neurocognitive issues- Management
Andrée-Anne Simard-Meilleur (CHU Sainte-Justine), Simon Charbonneau (CHUM), Mélanie Séguin (CHU Sainte-Justine)
11:30 AM
Canada/Eastern
Transitioning to adult care – Challenges and opportunities
Sarah Lapointe (CHUM), Julie Bennet (SickKids), Carolina Barnett Tapia (University of Toronto)
12:00 PM
Canada/Eastern
Lunch
12:45 PM
Canada/Eastern
Registries and research projects in NF1
Sébastien Perreault (CHU Sainte-Justine), Nirav Thacker (CHUM), Julien Rousseau (Boston)
1:30 PM
Canada/Eastern
Open discussion on areas for further collaboration
2:00 PM
Canada/Eastern
Déplacement des patients et famille dans la salle
2:05 PM
Canada/Eastern
Survol de la NF1
Émilie Éverard (CHU Sainte-Justine et CHUM)
2:35 PM
Canada/Eastern
Éléments importants à suivre chez les patients pédiatriques avec NF1
Alexandrine Larouche (CHU Sainte-Justine et Cité-de-la-Santé)
3:05 PM
Canada/Eastern
Éléments importants à suivre chez les patients adultes avec NF1
Sarah Lapointe (CHUM)
3:35 PM
Canada/Eastern
Break
3:50 PM
Canada/Eastern
Nouveautés en NF1
Julien Rousseau (Boston)
4:50 PM
Canada/Eastern
Projets et messages importants du symposium
Sarah Lapointe (CHUM) et Sébastien Perreault (CHU Sainte-Justine)
5:20 PM
Canada/Eastern
Closing remarks
5:30 PM
Canada/Eastern
