5. Patients count: development of a patient registry for Canada

Roundtable discussion led by Spencer Gibson, PhD.

Spaces limited; sign-up in advance.

Session overview:

Lymphedema patients are often left behind in the healthcare system. There are few dedicated clinics for lymphedema and many patients use private healthcare to seek treatments. There is a need to establish a lymphedema registry in Canada where we can track patients in the healthcare system. This will identify research questions that need to be addressed and ultimately get better care for lymphedema patients.

Session objectives:

1.     Objective 1: To make the case for a National Lymphedema Registry

2.     Objective 2: To determine the level of interest in a registry in the lymphedema community.

3.     Objective 3: Identify individuals who would want to be part of this registry.

If you are interested in attending, please follow this link to register your interest: Professional Sessions Pre-Registration

About Spencer B. Gibson

Dr. Spencer B. Gibson, PhD.  is a Professor at the University of Alberta in the Department of Oncology and the first Dianne and Irving Kipnes Endowed Chair in Lymphatic Disorders. At the national level, Dr. Gibson is part of the executive team representing the Prairie provinces for the Terry Fox Research Institute.