1. Discoveries in genetics and primary lymphedema
Presented by: Dr. Catherine C. McCuaig The current panel of genetic tests include 11 mutations, although over 40 primary lymphedema defects have been identified in which lymphedema is the primary finding. Other vascular anomalies may share similar genetic findings. In addition, there are many conditions that have other major problems, such that lymphedema may be a minor component. The phenotype and genotype may vary each condition. Discovering which genetic mutation is responsible for the lymphedema, may lead to preventative measures, such as in GATA2 deficiency, during which life saving bone marrow transplantation prevents the onset of leukemia. Or the patient with lymphedema who was found to have a syndrome called Tuberous Sclerosis. The latter had their lymphedema improve greatly due to the use of sirolimus that inhibits the RAS mutation. Following this presentation, participants will be able to: 1. Recognize the important role of genetics in causing primary lymphedema 2. Understand the link between other vascular anomalies and lymphedema 3. Appreciate the important new therapeutics that can address the genetic mutation Meet our Speakers and Presenters.
2. Lymphedema prospective surveillance and risk reduction
Lymphedema prospective surveillance and risk reduction In this session, Dr. Shallwani will examine prospective surveillance and risk reduction approaches in lymphedema. She will present the latest research evidence on these approaches and share examples of two Canadian programs. She will also discuss practical challenges to integrating prospective surveillance, and propose potential solutions based on research findings and clinical experience. Following this presentation, participants will be able to: 1. Understand the principal components of the prospective surveillance model 2. Identify potential lymphedema risk reduction practices (non-surgical) 3. Be familiar with recent research on lymphedema prospective surveillance and risk reduction 4. Recognize potential challenges and solutions to implementing prospective surveillance for lymphedema Meet our Speakers and Presenters.
3. Wounds and lymphedema: prevalence and management
Presented by: Dr. David Keast In a review of multiple international studies involving over 21000 patients, the overall prevalence of wounds in persons living with lymphedema was 32.8%. Prevalence ranged from a low of 2% to a high of 73.6%. Wounds are prevalent in chronic edema of the lower extremity. In this session an approach to management with a focus on the updated Consensus Document on Wound Infection will be reviewed. Case studies will be presented. Following this presentation, participants will be able to: 1. Appraise the statistics on the prevalence of wounds in persons living with lymphedema 2. Describe an approach to management of chronic wounds. 3. Review the characterises of infected wounds. 4. Discuss cases Meet our Speakers and Presenters.
4. How does lymphedema and its care impact body image and sexuality?
Panel discussion. Marie-Ève Letellier, Panel Moderator With Sandra Rotholc, RSW RP RMFT ACST and Anna Towers, MD n this interactive panel session, which is open to all attendees, experienced clinicians will lead a discussion on topics such as a modern, holistic view of sexuality and how one can regain a sense of wholeness despite having lymphedema. The panel will also explore how a therapist might consider the fact that lymphedema impacts body image and one's sexual self and integrate this into their practice. Session objectives: · Understand what is meant by the term “body image” · Understand what intimacy/sexuality is, and how these can be impacted for people living with a chronic health condition · Understand the important role of communication · Understand the kinds of resources and supports available · Reflect on the importance of considering couple relationships when one assesses or treats lymphedema Meet our Speakers and Presenters.
5. Lymphedema: learning to take care
Presenters: Anna Kennedy, Jean Ann Ryan, RNBN, CLT Join us for this session which will provide a lymphedema overview for first time attendees, newly diagnosed patients, and those at risk. Learn about the diagnosis and treatment of lymphedema, along with practical suggestions on how to manage lymphedema on a daily basis. Topics covered will include: · Lymphedema basics (primary vs. secondary) and prevalence in Canada · Risk factors · Diagnosis and stages · Signs and symptoms · Cornerstones of treatment: MLD, compression, skin care and exercise · Practical, day-to-day suggestions for managing your lymphedema · Where to find support: national and local resources Meet our Speakers and Presenters.